The Spoon Theory – Insight into Chronic Illness
For years and years Christine Miserandino has faced the reality that most people just don’t understand her situation: lupus, a devastating illness, takes a tremendous toll on her life. It’s not like she has a noticeable disability – no red-tipped cane or guide dog, no prosthetic leg or artificial hand. She just feels awful and feels that way much of the time. Her hidden disability colors every decision she makes.
For years she’s had little success whenever she’s tried to explain her limitations to others. Then one day, sitting in a diner eating french fries with a friend, she hit on a brilliant explanation: “The Spoon Theory.” Whether you yourself have a hidden disability or know someone who lives that struggle, her explanation is a must read.
Christine writes in a clear, straight-forward style. No whining. Just clarity. Her words bring understanding. They help diminish the sense of isolation that pervades the lives of those who “don’t look sick.” Click on The Spoon Theory and read her words yourself. You’ll be glad you did.
The Spoon Theory – Insight into Chronic Illness
© Lynne Fox, 2016
biblegrapes.com
Hi Lynne,
My late wife had Chronic Fatigue Syndrome, which is something like Lupus, some even theorize that it’s the same disease. I wish I could have read this article early in the time of her illness, it would have helped me, and her, tremendously. She had other health issues so I was her caretaker for appx 13 years until she went to Heaven. I think of so many times I accommodated her and/or took care of her, of the times I would go to a social event, or do something we had planned to do together, by myself because she had run out of spoons. But I didn’t really understand. I know she had to have been disappointed that I didn’t “get it”, but she was a Christian and close to the Lord, so she got her strength from Him.
Thank you for posting this.
A number of people have found this article so helpful that I decided it was important to post it on BibleGrapes. Thank you for sharing your experience. I appreciate your taking the time to share your heart.